A few months ago, Jessica said she wanted a job. Rene, her support coordinator, began the process for her. He contacted Vocational Rehab, and after a bunch of mishaps, we got the paperwork completed and started the process. Today, after numerous trips to Voc Rehab, I picked up Jessica at her group home and took her to a scheduled interview at Goodwill Industries. This was supposed to be the 1st of many visits before she could be placed in any sort of job. I decided I would help her since she wanted it. Husband didn’t think it would go very far. I said, “I’m alright with that. After all, I’m retired. I can take the time off to do it & if this is something she wants, I’ll help her. “ We went to the 2 hour interview. When we got there, the job placement specialist, V.S., appeared annoyed when Jessica wandered around and became distracted. She insisted if Jessica WERE placed in a job, she’d have to conform. V.S. had the nerve to tell me Jessica would be better suited to Goodwill’s “Work Activities Center ,” a different department, separate from Goodwill and one which required a separate application process altogether. Really? I’m patient but not this patient. She’s a job coach? She pissed me off. I told her about the plan to have Jessica placed in “Phase 2” (which Rene said would be our ultimate goal) The plan- to work with a job coach at the WOW center. Lady dismissed this possibility and argued with me, so I didn’t pursue it. During the 2 hour “interview,” V.S. explained all applicants are required to submit to a drug test. “Goodwill applicants must submit to a drug test within 24 hours of receiving this order.” I asked ” What if I do it another time?” “ Answer? “You will start the process all over again.’ Seriously? We went straight to the lab instead of the WOW center. At the drug testing lab, we waited for 30 minutes to be seen. Jessica did not produce enough urine in the cup (probably because she didn’t know how to pee into the container and was unable to fill it with urine.) and I wasn’t allowed to assist her. We tried a second time. This time she drank tons of water, I gave her a soda,& we waited another 45 minutes before the technician allowed us to try again. Again, she was unable to fill the container. At this point, I was told to “come back and try tomorrow, ” I was so distraught, frustrated and upset, I started to cry. On the way out, I turned on a clueless Jessica,. I swear I could’ve screamed bloody murder, I couldn’t believe how thwarted I felt. The whole process appeared to be a waste of time Jessica’s reply? “Forget it. I dont need no job.” It ended there in the parking lot, but I thought it shouldn’t be this hard to help a disabled person . I understand Jessica has enormous limitations but this was a terrible experience. The hardest part ? It emphasized and stood as a reminder of everything Jessica cannot do or will never do, including peeing in a cup! The support coordinator asked me to tell him what happened – so I emailed him a rehash of the entire thing. At least I got someone’s attention. He called as soon as he read it.
Ever hear that phrase, “Stay positive?” Wondering what exactly that phrase meant, I decided to look it up. Here’s the definition:
“Staying positive means accepting the fact that you’re in deep trouble and working towards a plausible solution rather than just sitting and crying over the fact that you’re in deep trouble.”
It all started this evening when I got another rejection letter from a literary journal for a short story (actually I submitted the first chapter of my book as a short story.) This strategy seemed like a good idea. It’s about the day Jessica moves into a group home and the emotional turmoil I experienced as I went through this experience. Within this same story, I have a flashback of when the doctors at the research center for child development said she was RETARDED. We all know the use of the ‘R-word’ is not only contemptuous, but it is archaic, politically incorrect, insulting and generally, a word that should be boycotted from our vocabulary. BUT in 1986, in a small conference room in Miami, as my husband and I sat in front of a couple of doctors, that’s exactly what was said. So a short story about this scene should be interesting or could be interesting if I was any good at writing. My decision to use that chapter as a short story was a genius idea, right? It had the human interest element and addressed the issues of inclusion. Perfect, right? Nope! I’ve already sent this story or versions of it to fifteen different contests and journals and so far, (drum roll please) – I’ve had a total of six rejections. I am probably going to have all fifteen rejected. So the bottom line is nope, I am NOT in deep trouble. I just have to stay positive.
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